Research Collaboration Requests
The Amputee Coalition (AC) believes in the power of transforming policy and practice for all People with Limb Loss/Limb Difference (PwLL/LD) through robust scientific evidence. As the nation’s leading patient advocacy organization for PwLL/LD, the AC represents patient-defined research priorities by regularly evaluating constituent needs and soliciting community feedback. Our Research Collaboration policy and procedure document is available on our website and standardize our interactions with all stakeholders and will ensure that PwLL/LD needs are centered as a priority in upcoming research. Definitions of Research Involvement The AC will focus on two types of research collaboration that further important, novel studies and activities that will improve prevention and health outcomes on behalf of the LL/LD community:
- Research Partnerships are collaborations that involve PwLL/LD data collected through AC outreach and/or AC staff as part of the design, implementation, analysis, and write up of research. The AC will act as an equitable partner. Research Partnerships will be reviewed by a sub-committee of our Scientific and Medical Advisory Committee (SciMAC), using importance and relevance of research questions as the metrics for scoring and approval.
- Research Resources are mechanisms for engaging PwLL/LD in research. AC staff will review and endorse enrolling studies, highlight ongoing research opportunities and resources, and provide a place for PwLL/LD to have an active Research Profile hosted on the AC’s network. The AC will also consider letters of support requests.
Each type of collaboration has an application form and we will disseminate collaboration information, including conflicts of interest, on our organization website for all approved studies.